I had the honor of speaking at the ACIP meeting at the CDC in June about the importance of access to the RSV prophylaxis for all premature infants. My good friend and preemie activist will be doing the same in October. Let's arm her with 10,000 signatures to show the ACIP that it isn't just Keira from Zoe Rose or Deb from PreemieWorld but that 10,000 parents from across the country want these guidelines changed. This is our chance to save lives of precious babies. It only takes a minute. Look above this post to vote and please spread the word. We only have two short months before the meeting.
Thank you!!!!
8.19.2010
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All time favorite video of Zoe!
Beautiful obit written by Zoe's Aunt Steph
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Bible verses that comfort me
"Yes, we are fully confident, and we would rather be away from these earthly bodies, for then we will be at home with the Lord."
~ 2 Corinthians 5:8
"Let the children come to me. Don't stop them! For the Kingdom of God belongs to those who are like these children....Then he took the children in his arms and placed his hands on their heads and blessed them"
"Let the children come to me. Don't stop them! For the Kingdom of God belongs to those who are like these children....Then he took the children in his arms and placed his hands on their heads and blessed them"
~ Mark10:14 & 10:16
"...those who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint"~ Isaiah40:31
Preemie sites & others important to me
- Alexander Graham Bell Assoc
- Baby Hearing
- Bereavement Support for Multiple Birth Families
- Center for Loss in Multiple Birth (CLIMB)
- Graham's Foundation
- Hand to Hold
- Lekotek
- March of Dimes
- Mississippi Perinatal Association
- MOST - Mothers of Supertwins
- Names in the sand
- Naomi Levit Photography
- National Perinatal Association
- Noah's website
- Parent Resource Network
- Preemies Today
- PreemieWorld
- RSV Protection Info
- Share...pregnancy and infant loss support
- The Compassionate Friends
- The First "Tripled Pink" site
- Tracheomalacia info
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